Moving Beyond the "Clash of Cultures"

"The perceptions and values of disabled people (particularly disability rights advocates and disabled social scientists) and of many nondisabled people (particularly health care professionals, ethicists, and health policy analysts), regarding virtually the whole range of current health and medical-ethical issues (treatment decision making, health care access and health care rationing, medical cost-containment, and assisted suicide) seem frequently to conflict with one another....Can we bridge the apparent gulf between disabled and nondisabled perspectives?...The perspectives and values of the disability rights community...need to be incorporated into the ongoing debate about medical practice, ethics, and policy."

--Paul Longmore, "Medical Decision Making and People with Disabilities: A Clash of Cultures," J of Law, Medicine and Ethics 23 (1995): 82-87.

Monday, October 25, 2010

Selected resources for teaching disability in the health care professions

Kristi L. Kirschner MD
Professor, Clinical Medical Ethics and Humanities and PM&R
Northwestern University Feinberg School of Medicine
Attending Physician, Schwab Rehabilitation Hospital

ASBH 10/21/10

Albrecht GL, Seelman KD, Bury M.  (Eds.) The Handbook of  Disability Studies. Thousand Oaks, CA: Sage Publishers, 2001.

Iezzoni L, O’Day  BL. More Than Ramps: A Guide to Improving Health Care Quality and Access for People with Disabilities. Oxford: Oxford University Press, 2006.

Educational DVD and training curriculum: Access to Medical Care, World Institute on Disability 2005 www.wid.org/programs/health-access-and-long-term-services

Gill CG, Kirschner KL.  Educational DVD.  Learning to Act in Partnership:  Women with Disabilities Speak to Health Professionals, 2002. Rehabilitation Institute of Chicago Women with Disabilities Center 312.238.8003; Fax: 312.238.1205;  wwdc@ric.org

Modular curricular materials developed by Academic Professors of Obstetrics and Gynecology www.womenwithdisabilities.org

The Center for Universal Design at North Carolina State University   brochure “Removing Barriers to Healthcare” http://www.fpg.unc.edu/~ncodh/pdfs/rbhealthcare.pdf.

US Department of Health and Human Services, Office of Civil Rights:  Civil Rights on the Basis of Disability http://www.hhs.gov/ocr/discrimdisab.html

The Center for Disabilities in the Health Professions Tool for decreasing health care barriers: Accessible health care briefs. http://www.cdihp.org/products.html

Panko Reis J, Breslin ML, Iezzoni LI, Kirschner KL.  It takes more than ramps to solve the crisis of healthcare for people with disabilities.  Chicago:  Rehabilitation Institute of Chicago, Sept 2004. http://www.ric.org/pdf/RIC_whitepaperfinal82704.pdf

Electronic tool kit of curricular resources for health professions students has been made available through the Association of University Centers on Disability
http://www.aucd.org/template/news.cfm?news_id=3194&id=102&parent=102
Kirschner KL, Breslin ML, Iezzoni LI. “Structural Impairments That Limit Access to Health Care for Patients with Disabilities.”  JAMA 2007; 297(10): 1121-1125.

Kirschner KL, Curry RH.  “Educating Health Care Professionals to Care for Patients with Disabilities,”  JAMA 2009; 302(12): 1334-5.

Shakespeare T.  Disability Rights and Wrongs.  New York: Routledge, 2006

Shapiro JP. No Pity: People with Disabilities Forging a New Civil Rights Movement.  New York: Three Rivers Press, 1994.

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