Moving Beyond the "Clash of Cultures"

"The perceptions and values of disabled people (particularly disability rights advocates and disabled social scientists) and of many nondisabled people (particularly health care professionals, ethicists, and health policy analysts), regarding virtually the whole range of current health and medical-ethical issues (treatment decision making, health care access and health care rationing, medical cost-containment, and assisted suicide) seem frequently to conflict with one another....Can we bridge the apparent gulf between disabled and nondisabled perspectives?...The perspectives and values of the disability rights community...need to be incorporated into the ongoing debate about medical practice, ethics, and policy."

--Paul Longmore, "Medical Decision Making and People with Disabilities: A Clash of Cultures," J of Law, Medicine and Ethics 23 (1995): 82-87.

Tuesday, October 19, 2010

HUMANITIES AND DISABILITY: Some Recommendations


Staring Back: The Disability Experience from the Inside Out Kenny Fries (ed); PLUME, 1997
Elephant Man, Bernard Pomerance, Grove, 1979
Articulating the Elephant Man: Joseph Merrick and His Interpreters Peter W. Graham and Fritz H. Oehlschlaeger Johns Hopkins University Press, 1992
Broken Vessels: Essays Andre Dubus David R. Grodine Pub., 1991; Meditations from a Moveable Chair, Vintage, 1999
The Diving Bell and the Butterfly Jean Dominique Bauby, Vintage International, 1997
Behind the Curtain: Disability, Illness, and the Extraordinary Body in Contemporary Theater Thomas Fahy and Kimball King (eds), Routledge, 2002
A Whole New Life: An Illness and a Healing Reynolds Price, PLUME, 1995.
A Healing Family; A Personal Matter Kenzaburo Oe Kodansha International, 1995, Grove Press, 1969
Autobiography of a Face, Lucy Grealy; Harper Perennial, 2003
Truth and Beauty: A Friendship, Ann Patchett, HarperCollins, 2004
The Body Silent Robert Murphy, WW Norton, 1990
Plain Text: Essays, Nancy Mair, University of Arizona Press, 1986; Waist-High in the World: A Life among the Nondisabled, 1997
After the Stroke, May Sarton, WW Norton, 1988
Staring: How We Look Rosemarie Garland-Thomson, Oxford University Press, 2009; Extraordinary Bodies, Columbia University Press, 1996
Regarding the Pain of Others Susan Sontag, Picador, 2003
The Disability Studies Reader, Lennard Davis, Routledge 2010
Nothing About Us Without Us, James Charlton, Univ of California Press, 2000
Disability Studies: Ennabling the Humanities, Sharon L. Snyder, Brenda Jo Brueggeman, Rosemarie Garland-Thomson, (eds), Modern Language Association of America, 2002


Johanna Shapiro, PhD
Professor
Director, Program in Medical Arts and Humanities
Faculty Advisor, Plexus: Journal of Arts & Humanities
Family Medicine
U of California, Irvine



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