Moving Beyond the "Clash of Cultures"

"The perceptions and values of disabled people (particularly disability rights advocates and disabled social scientists) and of many nondisabled people (particularly health care professionals, ethicists, and health policy analysts), regarding virtually the whole range of current health and medical-ethical issues (treatment decision making, health care access and health care rationing, medical cost-containment, and assisted suicide) seem frequently to conflict with one another....Can we bridge the apparent gulf between disabled and nondisabled perspectives?...The perspectives and values of the disability rights community...need to be incorporated into the ongoing debate about medical practice, ethics, and policy."

--Paul Longmore, "Medical Decision Making and People with Disabilities: A Clash of Cultures," J of Law, Medicine and Ethics 23 (1995): 82-87.

Friday, October 15, 2010

Disability and Deaf Cultures Web Resources (a short list)

Blogs


disabled feminists

planet of the blind

bad cripple

First, Do No Harm:
Real Stories of Fat Prejudice in Health Care

Liz Spikol
mental disability

Amanda Baggs
woman with autism


Web Resources:  Justice, Ethics, Health & Disability, Deafness, Fat Studies

Disability Studies Quarterly
outstanding journal, free online & searchable

Project Bias
can be used as a teaching tool

CDC video on disabled people as standardized patients

Amanda Baggs, “In My Language”
brilliant disability manifesto made by woman with autism

Ragged Edge online
search for ethics/clinical topics

Canadians with Disabilities:  We Are Not Dead Yet
continuing, not end-of, life issues:

Anne Finger on Disability and Hurricane Katrina, 2005

Fat studies perspective on anti-obesity campaign:

Health at Every Size wiki

Yale online course on weight bias in clinical settings

the Icarus Project
psychiatric survivors

Mind Freedom International
psychiatric survivors

Deaf Studies Digital Journal

William Peace on the Ashley Treatment

Deaf MD


Web Resources:  Arts and Culture


wheelchair dancer

Wordgathering: A Journal of Disability Poetry