Moving Beyond the "Clash of Cultures"

"The perceptions and values of disabled people (particularly disability rights advocates and disabled social scientists) and of many nondisabled people (particularly health care professionals, ethicists, and health policy analysts), regarding virtually the whole range of current health and medical-ethical issues (treatment decision making, health care access and health care rationing, medical cost-containment, and assisted suicide) seem frequently to conflict with one another....Can we bridge the apparent gulf between disabled and nondisabled perspectives?...The perspectives and values of the disability rights community...need to be incorporated into the ongoing debate about medical practice, ethics, and policy."

--Paul Longmore, "Medical Decision Making and People with Disabilities: A Clash of Cultures," J of Law, Medicine and Ethics 23 (1995): 82-87.

Thursday, November 4, 2010

select bibliography--bioethics & disability

compiled by Rebecca Garden (gardenr@upstate.edu)

American J. of Bioethics--target article and commentaries. AJOB 2001; 1(3).

Asch, A. Disability, bioethics, and human rights. Handbook of Disability Studies. Gary L. Albrecht, Katherine D. Seelman, Michael Bury, eds.

Amundson, R., Tresky, S.  Bioethics and Disability Rights: Conflicting Values and Perspectives.  J of Bioethical Inquiry. 5(2-3) 111-123.

 

 

Amundson, R., Taira, G. Our Lives and Ideologies:  The Effect of Life Experience on the Perceived Morality of the Policy of Physician-Assisted Suicide. Journal of Disability Policy Studies Vol. 16/No. 1/2005/Pp. 53–57.

Clapton, J.  Tragedy and catastrophe, Journal of Intellectual Disability Research 47(7); Oct 2003: 540-7

Hahn, H.  Bioethical debates, disability discourse, and a discordant singer.  J of Disability Policy Studies.

Journal of Bioethical Inquiry--special issue: "Reconfiguring Disability: From Bioethics to Biopolitics,"  Vol. 5, Numbers 2-3.

Kirschner KL, Brashler R, Savage TA (2007). Ashley X. Am J Phys Med Rehabil. 86(12):1023-9.

Kirschner KL. Rethinking Anger and Advocacy in Bioethics.  American J of Bioethics. Summer 2001, Volume 1, Number 3: 60-63.

Kittay, E.F., Carlson, L. eds.  Cognitive Disability and Its Challenge to Moral Philosophy (Metaphilosophy Series in Philosophy) Wiley-Blackwell 2010.

Koch, T. Disability and difference: balancing social and physical constructions. J Med Ethics 2001;27:370-376.

Kumari Campbell, F. Contours of Ableism: The Production of Disability and Abledness

 Palgrave Macmillan (October 27, 2009

Kuczewski, M.G. (2001) Disability: An Agenda for Bioethics. American Journal of Bioethics, 1(3): 36-44.

Kuczewski, MG, Fiedler, I, (2005) Ethical Issues in Physical Medicine and Rehabilitation: Treatment Decision Making with Adult Patients, Critical Reviews in Physical and Rehabilitation Medicine 17(1): 31-52.

Kuczewski, MG, Fiedler, I, (2005) Ethical Issues in Physical Medicine and Rehabilitation: Treatment Decision Making with Adult Patients, Critical Reviews in Physical and Rehabilitation Medicine 17(1): 31-52.

Leach Scully, J.  Disability Bioethics: Moral Bodies, Moral Difference. Rowman & Littlefield  2008.

Newell, C. "Biomedicine, Genetics and Disability: reflections on nursing and a philosophy of holism," Nursing Ethics, Vol. 7, No. 3, 227-236 (2000).

Newell, C. Disability, Bioethics, and Rejected Knowledge.  J of Medicine and Philosophy 31(3): 269-83.

Overboe, J. Disability and Genetics: Affirming the Bare Life (the State of Exception).   The Canadian Review of Sociology and Anthropology; May 2007; 44, 2; pg. 219

Parens, E. Asch, A. Prenatal Testing and Disability Rights. Georgetown University Press 2000.

Savage, T. A. Savage, Carol J. Gill, and Kristi L. Kirschner, Editors of the Special Section, “Introduction to a Special Section on Disability Ethics,” The Journal of Clinical Ethics 15, no. 4 (Winter 2004): 256-63.

Shakespeare, T. Disability Rights & Wrongs.  Routledge 2006.

Silvers, A.  Disability, Difference, Discrimination: Perspectives on Justice in Bioethics and Public Policy.  Rowman and Littlefield, 1999.

Squier, S. M. Narrating genetic disabilities: social constructs, medical treatment, and public policy.  Issues in Law and Medicine.

Theoretical Medicine and Bioethics--special issue.  Vol. 24, no. 6, 2003.

Tremain, S. The Biopolitics of Bioethics and Disability, J. of Bioethical Inquiry. 5(2-3): 101-106.

Tremain, S.L., ed. Foucault and the Government of Disability (Corporealities: Discourses of Disability). U of Michigan 2005.

Tremain, S.L. Stemming the tide of normalization. J. of Bioethical Inquiry 2006; 3(1-2): 33-42.

Wendell, S. The Rejected Body: Feminist Philosophical Reflections on Disability. Routledge, 1996.

Wolbring, G. Disabled People’s Approach to Bioethics.  American J of Bioethics. Summer 2001, Volume 1, Number 3

Wolbring, G. Disability rights approach toward bioethics? (Point/Counterpoint) Journal of Disability Policy Studies 2003.



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