Disability and Deaf Cultures Web Resources (a short list)

Blogs

what sorts of people
http://whatsortsofpeople.wordpress.com/

disabled feminists

http://disabledfeminists.com/

planet of the blind

http://www.planet-of-the-blind.com/

bad cripple

http://badcripple.blogspot.com/

First, Do No Harm:

Real Stories of Fat Prejudice in Health Care

http://fathealth.wordpress.com/

Liz Spikol

mental disability

http://blogs.philadelphiaweekly.com/trouble/

Amanda Baggs

woman with autism

http://ballastexistenz.autistics.org/

Web Resources:  Justice, Ethics, Health & Disability, Deafness, Fat Studies

Disability Studies Quarterly

outstanding journal, free online & searchable

http://www.dsq-sds.org/

Project Bias

can be used as a teaching tool

https://implicit.harvard.edu/implicit/

CDC video on disabled people as standardized patients

http://www.cdc.gov/NCBDDD/video/MarksStory/Full/index.html

Amanda Baggs, “In My Language”

brilliant disability manifesto made by woman with autism

http://www.youtube.com/watch?v=JnylM1hI2jc

Ragged Edge online

search for ethics/clinical topics

http://www.ragged-edge-mag.com/

Canadians with Disabilities:  We Are Not Dead Yet

continuing, not end-of, life issues:

http://www.ccdonline.ca/en/humanrights/endoflife/euthanasia/Canadians-with-disabilities-we-are-not-dead-yet

Anne Finger on Disability and Hurricane Katrina, 2005

http://www.rollingrains.com/archives/000644.html

Fat studies perspective on anti-obesity campaign:

http://www.huffingtonpost.com/jane-shure/lessons-from-my-life-as-a_b_732616.html

Health at Every Size wiki

http://en.wikipedia.org/wiki/Health_at_Every_Size

Yale online course on weight bias in clinical settings

http://learn.med.yale.edu/rudd/weightbias/

the Icarus Project

psychiatric survivors

http://theicarusproject.net/

Mind Freedom International

psychiatric survivors

http://www.mindfreedom.org/

Deaf Studies Digital Journal

http://dsdj.gallaudet.edu/

William Peace on the Ashley Treatment

http://www.counterpunch.org/peace01182007.html

Deaf MD

http://www.deafmd.org/

Web Resources:  Arts and Culture

deaf can dance
http://www.youtube.com/watch?v=G-xIZ9yVKRY&feature=related

wheelchair dancer

http://cripwheels.blogspot.com/

Wordgathering: A Journal of Disability Poetry

http://www.wordgathering.com/

Bibliography: Women, Disability & Deafness

I also have a lot of related types of articles in a bibliography on women with disability and issues related mostly to reproductive rights (intermixed with articles on motherhood.  I know there are one or two on deafness as designer disability). 
http://disabilitystudies.syr.edu/resources/motherhood.aspx

Here, too, is a section on D/deaf women:
http://disabilitystudies.syr.edu/resources/deafwomen.aspx

From:
Rachael A. Zubal-Ruggieri
Information Coordinator, SU Center on Human Policy, Law, and Disability Studies
Coordinator of Computer & Technical Applications, Mid-State Early Childhood Direction Center
Coordinator of Computer & Technology Outreach, Syracuse University Parent Advocacy Center (SUPAC)
Editorial Staff, Intellectual and Developmental Disabilities (IDD)
Syracuse University, 805 South Crouse Avenue
Syracuse, NY  13244-2280
315-443-2761 | FAX 315-443-4338
E-mail:  thechp@syr.edu | E-mail:  razubal@syr.edu
http://thechp.syr.edu | http://ecdc.syr.edu
http://disabilitystudies.syr.edu | http://www.supac.org

A really comprehensive bibliography on disability, health, &/or ethics

http://refworks.scholarsportal.info/refshare/?site=010381128139200000/190-95-8SKCK71839989/Upload

Sent to me by
Dr. Gregor Wolbring
Assistant Professor
University of Calgary
Phone 1-403-210-7083
webpage: http://www.bioethicsanddisability.org

Disability in the Medical Literature: A Short Bibliography

International classification of functioning, disability and health. International Classification of Functioning, Disability and Health. 2001. 

Iezzoni LI. Tracking disability disparities: The data dilemma. Journal of Health Services Research and Policy. 2008;13:129-130. 

Iezzoni LI. Going beyond disease to address disability. N Engl J Med. 2006;355:976-979. 

Iezzoni LI. Toward universal design in assessing health care experiences. Med Care. 2002;40:725. 

Iezzoni LI. A 44-year-old woman with difficulty walking. J Am Med Assoc. 2000;284:2632-2639. 

Iezzoni LI. What should I say? communication around disability. Ann Intern Med. 1998;129:661-665. 

Iezzoni LI, Freedman VA. Turning the disability tide: The importance of definitions. JAMA - Journal of the American Medical Association. 2008;299:332-334. 

Iezzoni LI, McCarthy EP, Davis RB, Harris-David L, O'Day B. Use of screening and preventive services among women with disabilities. American Journal of Medical Quality. 2001;16:135-144. 

Iezzoni LI, O'Day BL, Killeen M, Harker H. Communicating about health care: Observations from persons who are deaf or hard of hearing. Ann Intern Med. 2004;140:356-362+I68. 

Kirschner KL, Breslin ML, Iezzoni LI. Structural impairments that limit access to health care for patients with disabilities. Journal of the American Medical Association. 2007;297:1121-1125. 

McCarthy EP, Ngo LH, Roetzheim RG, et al. Disparities in breast cancer treatment and survival for women with disabilities. Ann Intern Med. 2006;145:637-645. 

Steinberg AG, Iezzoni LI, Conill A, Stineman M. Reasonable accommodations for medical faculty with disabilities. J Am Med Assoc. 2002;288:3147-3154. 

Ubel PA, Loewenstein G, Jepson C. Whose quality of life? A commentary exploring discrepancies between health state evaluations of patients and the general public. Quality of Life Research. 2003;12:599-607.